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Wednesday, January 25, 2017

Not Really Prepared

First off, I want to apologize for not sending out an update sooner. I honestly still don't know how to write down what I am truly feeling at this point. I think after you go through any major life/body altering change it takes some time to process.

I have been preparing for this surgery for almost 2 years, I was even a little excited to report to the hospital at 5:30 am. I talked to lots of other women who have had this surgery, even some women who used the same surgeons. I prepared meals, menus and arranged for my kids to be taken care of. I researched the surgery, asked hundreds of questions during my multiple doctors’ appointments; and organized and bought items that would help with my recovery.  I feel like I did not go into this surgery blind.

Ryan was able to get home from work early on Wednesday afternoon and we loaded the two littles in the car and drove to my sister-in-law's house. My mom had already driven to St. George that afternoon, ready to take over the house duties and caring for the older two. Annette was so excited and ready to play with Gage and Alyssa. Driving away, saying goodbye to my kids, knowing it would be a least a week, maybe two before I would get to see them again. That was the hardest part.

I met lots of doctors, assistants, nurses and the anesthesiologist the morning of the 19th. The last few things I remember was kissing Ryan goodbye and a young kid wheeling me down a long hall to the operating room. A young doctor came over and introduced herself and said she was going to give me some meds - one to help with nausea and one to calm my nerves. I remember being wheeled through the double doors and moving from the bed to the cold surgery table. I remember thinking, “holy crap”, there are a lot of masked people in here. I couldn’t make out my team of 3 surgeons but I started counting all the others.  I got to twelve and then I don't remember anything else.

The best estimate my surgeons had for the surgery was it would take 4 to 6 hours. Six hours passed. Then seven. Then eight turned into nine. My surgery lasted nine hours. I don’t remember much of that night. Waking up in my room, saying hi to Ryan and that is about it. Friday was not much better. A pain I did not expect was in my left arm. Something having to do with the position it remained in all through surgery. I could hardly lift it. I recall asking  Ryan to massage it over and over again. I was in and out of sleep, trying to eat a few things from my clear liquid diet down, a few visitors and my first attempt to get out of bed and stand. 

Nothing, really nothing could have prepared me for the pain. I was literally cut in half, hip to hip, and it felt like it! Honestly, the first time I saw my new breasts and stomach I was a little scared, I looked Frankenstienish, But a flat stomach was awesome and I had two boobs again! I have to admit not seeing a belly button was a little weird. The medical team seemed pleased with the way the flaps and incisions looked and how I was progressing along. I was monitored every 2 hours. Between getting vitals and medications, checking on the viability of the flaps with a Doppler, and stripping my JP drains, I was not alone very often; they did this round the clock. I did not sleep very well or for very long periods. The first night they had to call in the on-call doctor because I was not breathing well and my oxygen levels were low, so I needed to be put on oxygen, after that I was fine. At one point I had the blood pressure cuff on my arm, O2 sensor on my finger, oxygen nose cannula, 5 JP drains down each sides, a flap monitor on each new breast and two special stitches for the Doppler readings. I was pretty much tethered to the bed, which was fine with me because I didn't want to go anywhere.

On Saturday, more family came to visit and I am sorry if I was not very social or even that conscious. Ryan had to leave on Saturday to head home. Saturday was an okay day and there was talk from one of my doctors to possibly be released on Sunday. But on Sunday, I woke up in a lot of pain and was having a really rough time and crying a lot. I received so many pretty flower bouquets, chocolates and even homemade chocolate chip cookies. I asked my doctors if I could stay until Monday. By Monday I felt my pain was in better control but I still did not feel ready to leave the safety of the hospital. My sister came to get me and received a crash course on how to be my nurse. I left with pages and pages of documents on what to watch for, what meds to take, things not to do and things to do and when to call the doctor.

My sister has been an awesome nurse, making sure I eat and rest, helping me to move more, and keeping track of my meds. She even has to help me strip my drains, and it is pretty gross!

My sister-in- law was so sweet to bring my younger kids up to see me yesterday. It has been a week and miss them like crazy. She is going to drive them down to St. George today and stay through the weekend to help.

Currently, my day consists of waking up, eating breakfast, walking around a bit, sitting down when I get winded and to much in pain. Then lunch and a nap. Later dinner, more walking and sitting and then to bed. Honestly I am so tired, worn out and in pain. I didn’t even think of any pain other than the incision, but oh my back! I feel like it is always going to give out on me and I will crumble to the floor.

Friday I have my post doctor’s appointment and I will see how things are healing and if I am released to make the trip home. I am not sure which option to hope for.





Wednesday, January 18, 2017

Tomorrow


I feel like I have been waiting forever for tomorrow to come, 
yet how did it get here so fast.
After my failed reconstruction in December 2014, 
I knew that someday I would want to try
another type of reconstruction and as a preventive measure, 
have a left mastectomy.  

I knew I would wait for a while because I was tired of surgeries 
and I wanted Gage to be a little older.  
For me, the hardest part of the original mastectomy was not being 
able to pick him up and hold him against my chest, or hug my 
other children.  
But, now his is 2 1/2 and is in the "I do it" phase.  
I feel more ready and feel like I have prepared for this surgery.  
Had I done this surgery over a year ago I don't know if I would feel that way.  
This delayed reconstruction has given me the time I needed to make sure 
this is really what I want and come to terms with the way things are happening. 

So tomorrow is the day.
To say I feel excited sounds absurd, even to me.
To say I am scared is an understatement.
There are only a few times in my life I can remember feeling such conflicting emotions.

I am eager and excited to put another surgery behind me and be that much more closer to feeling 
"whole"again, for a lack of a better word.  Yet the gravity and size of this next surgery 
frightens me to no end.  I will be the first to admit I am not a good patient.  
I want to rush through and get back to my normal routine as fast as I can.  
But I know that is not wise.
So I have to graciously accept help and slow down. 

This letter has been circulating around the internet and facebook for a while, 
yet I find it fitting that it popped up on my news feed today.
It is beautifully written and made me feel more at peace as I head to the
hospital tomorrow morning.





An Open Letter to my Patient on the Day of her Mastectomy
October 16, 2013

Hello Dear,
Today is the day. I am a member of the surgical team who will take care of you -- the team 
that will remove your breast to treat the cancer that has tried to make a home in your body. 
We all have our role today, and the world would see yours to be the "patient." 
I see it as something more: a powerful gift to us.
Because you remind us why we do what we do.

Today will feel sterile and scary. And I am sorry for that.

I wish there were a better way. Today we will ask you to take all your clothes off and put 
in their place a gown. Women before you have worn it. Women after you will wear it. 
Be sure to ask for warm blankets, because we always have plenty. 
We will ask of you your blood type, your medical history, your allergies. 
We will ask you to lie down in a bed that's foreign to you. 
We will have to poke you so that we can start an IV.
You will meet many nurses, doctors, and hospital employees. 
We will write down important things for you to know. 
Your surgeon will see you soon. 
He will have to mark the breast we are having to remove today.
We will take you into the Operating Room -- a room only few have seen. 
There will be bright lights, lots of metal, instruments that you've never seen, 
and we will be dressed in gowns, gloves, and masks. 
Over our masks, we hope you can see our eyes reassuring you as you go off to sleep.

Today is the day you will have to say goodbye to a 

part of your body, a part of yourself.


Your breast has felt the warmth of a lover's caress, 
has fed your child with life-sustaining milk and connection. 
You have many memories stored in your breast, stories none of us today know about. 
Somehow I wish I knew them.
And yet. Here we are. We must do our rituals. 
We must scrub our arms and hands with alcohol so that we can fight off infection before we start. 
We don our gowns, our gloves, our masks. 
We must drape your body in blue.

You are exposed. And unconscious. 

And it must be difficult to trust. I honor you, Dear One.


My job is to help your surgeon take away the cancer. 
I get a bird's eye view of the process. 
The surgery begins and I feel your warm skin through my gloves. 
I wonder what stories you already have and the ones that are yet to come.
We carefully remove your breast. It never gets easy to see or to do. 
You must know this
It never feels natural, it never feels cavalier. It feels sacred to me. Every. Single. Time.
I look down and see your pectoralis major --- the big muscle behind your breast. 
A source of strength. It is beautiful and shiny. 
Sometimes it contracts a little bit while we work. 
Sometimes the muscle is bright red and young. 
Sometimes the muscle is faded a little. 
But it is always strong
I like to gently touch it with my fingers. 
Because I feel your strength there.
We must send your breast away now. It officially leaves your body. 
I always feel an ache in my gut in that moment. 
There is no way for you to fully prepare for this day, Dear One.

I like to think that your body is already healing, 

as we close the incision we had to make.


Sewing your skin back together feels like I'm helping a little. 
But I know it's actually all you doing the work. 
Even as you sleep, Dear One.
We will put a bandage on your incision. 
We will wake you up. 
We will tell you everything went well. 
But the road is just beginning for you.
I saw you today.
You are beautiful.
You are strong.
Thank you for entrusting me and my colleagues with your most intimate moments. 
I am honored to be a witness to this phase of your life.
Because now the healing begins. 
Now the grief is in full force. 
Now your breast is gone and in its place is a memory.
I watch you as you wake up. 
And I want to make it all go away. I can't. 
Today your body underwent a transformation. 
And today our team took care of your body. 
I hope we took care of your heart, too.
There is nothing we can say or do to make it go away. 
But please know that I care. We care. 
Behind our masks and gowns are heavy hearts and sometimes tears.
Yours are a gift today. 
Because you remind us of human resilience. 
You remind us of strength. 
You remind us of trust.
I saw you today.
You are beautiful.
You are strong.
I will not forget.
---Niki, your Nurse Practitioner First Assistant on the Surgical Team